Lucy is doing well this time around on the oscillator. They’ve been tweaking the settings, and her mean and amplitude could be a little lower, but she seems to be happy right now. Her CO2 levels were staying kind of high this morning, so the doctor was worried about infection and started her on antibiotics again. Since they can’t actually diagnose infection until the symptoms are pretty bad, they start antibiotics if there is any suspicion. But her white blood cells are not elevated, we’ll hear about her blood culture sometime tomorrow, and she’s not acting sick, so I hope she doesn’t have an infection. Also, her red blood cell count was a little low, so she had another blood transfusion. He still hasn’t done her PICC line, so she still has her umbilical central line.
But it was a good day. Her oxygen requirement has been fairly low – it was 25% when I left her tonight. She’s also been very active today, and the nurses took some cute pictures of her (I’ll post tomorrow). Her feedings are up to 3 cc’s every 6 hours (did I mention that already?) and still going well – no residuals. Also, she pooped all by herself, without needing a suppository. She pooped a lot, in fact. Once earlier, and her night nurse said she “had a HUGE poop,” which got all over apparently. Her first diaper blowout! And I couldn’t be happier about it! Of course, I don’t have to clean it up yet.
Another really good thing is that her bedsores seem to have just disappeared. They put a dressing on them that is removed after three days. So today, when her nurse removed it, she couldn’t find any evidence of sores. She called in the wound care specialist and the other nurses, and none of them could even see where the sores had been, only smooth skin. Ha, they said it was a miracle. Apparently my baby has miraculous healing powers, which should serve her well over the next few months.
During tonight’s visit we got a blood gas result back, and it was very good. The doctor didn’t want to make any changes to her vent, but she’s definitely doing better. After reading her a story, I left her happily thrashing around and going to town on a pacifier, which was pretty cute.
David went home for the weekend to help move, and I already miss him, but I managed to get myself from Memorial Hospital to Mercy Hospital without getting lost. He’ll be back Sunday. My sweet dad came and picked him up. And while I’m acknowledging help, here are a couple more: thank you to everyone who has donated leave to David so he can stay here with me and Lucy. It means so much to us. And thank you, Lauren, for giving us the means to have a sort of celebration/date night the other night. We had a really nice meal at Macaroni Grill, and it was nice to have a night out. And thanks to Walgreens. The managers of the area Walgreens come to the RMH to cook once a month, so last night we got some fantastic carne asada tacos. Awesome. And thanks to the numerous other people who have kept us in their thoughts and prayers.
There’s a fifth grade boy staying at the Ronald McDonald House for a few days. He’s a sweet kid, and precocious. Tonight as I was eating my salad, he heated himself a leftover hamburger, ate it, then announced that he was going to have some eggs. A minute later he asked me if he should use a certain pan, and then “soooo, do I just spray some Pam in it?” Okay, I realized this kid has no idea how to make eggs. So I taught him how to make scrambled eggs, showing him all the little tricks my dad taught me. And the kid produced some perfect scrambled eggs. He said “wow, I did a good job. Well, now I know how to make scrambled eggs.” I was so proud of him! And I can’t wait to teach Lucy stuff like that.
That right eye is still harder to open:
She was squeezing mommy’s finger a second before this was taken:
Daddy got to feed Lucy this morning before he left:
And this is especially for Daddy to watch in the morning. This is how she was when I left her tonight. It’s kind of long; skip to a minute or so in if you want to see the way she was squirming (some might say spazzing out, but not me, because Grandma Olson reads this and she says I can’t say that).